SNAP News: 

July 2015

Welcome to SNAP News in July! 

This months newsletter kindly sponsored by Diary Dolls

Like to see your company details here? 
please contact: Jackie@snapchildcare.co.uk

Cerebral Palsy Conference 2015 

a journey for life

On Monday 6th July, Sally and Jackie attend a new one-day conference presented by the Brain Injury Trust - Cerebral Palsy | a journey for life.

The diverse programme was intended to share best practice, experience and knowledge both in caring for and supporting those with Cerebral Palsy.

The speakers included leading experts drawn from the medical, medico-legal, legal, charity and professional services sectors.

We particularly liked the presentation by Andrew Hannam, Partner at Foot Anstey LLP who introduced us to his client 14 year old Tegan Vincent-Cooke and her mother, Sylvia Vincent.

Tegan was struggling to make friends at school, and believed a lack of awareness about the disability meant fellow pupils were too shy to approach her and felt uncomfortable asking questions.

She decided to turn her story - right from her birth to the present day - into a video, explaining how cerebral palsy affects her daily life.  In the film, she describes the feelings of isolation and anxiety she has had to deal with as pupils stared at her when she walks through the corridors in between lessons.

After writing about her experiences, she enlisted the help of professional animators, a narrator and producer to bring her words to life in a film.

She says the animation means her classmates now better understand cerebral palsy, and she has made more friends as a result.

Tegan, who is studying to become a zoologist, reminds us that it's not Disabled, it's DIF-ABLED (which stands for DIFferently-abled) and is adamant that her Cerebral Palsy will not hold her back, we're confident it won't!

See Tegan's video below in our Favourite YouTube Clips.

Another highlight was the final speaker, actress, writer and comedian Francesca Martinez who, as someone with Cerebral Palsy, takes a refreshingly different view on prejudice and disability.

“I don’t like labels, which is why – though I have cerebral palsy – I prefer to describe myself as ‘wobbly’. That sounds much more cool” said Francesca, who has recently published her book ‘What the **** is Normal?!’, “Disability isn’t going away – it’s always going to exist.  So I’d like to see a world where it’s accepted and where people aren’t defined by what they can’t do, but what they can.”

 
Brain Injury Group

The Brain Injury Group is a not-for-profit Community Interest Company that provides a complete package of support for brain injured people and their families.

The Brain Injury Group was established in 2011 as a national network of dedicated brain injury lawyers and other specialist services to provide a gateway to information and advice for brain injured people, their families and carers.

 
 


SNAP Visits The Children's Trust, Professionals Day  

 

The Children’s Trust runs the UK’s largest rehabilitation centre for children with brain injury. Every year they support thousands of children and families right across the UK.  Twice a year they give professionals the chance to visit the centre in Tadworth, meet the team and find out more.

Janet and Rachael from SNAP were lucky enough to attend the event in July and spent an incredibly upbeat and at times emotive morning, meeting just some of the most wonderful professionals involved in the Children’s Trust.

They listened to one parent, who before telling us his story, made the therapists and the audience stand up and sing his daughter’s favourite song. His story was moving and positive and he commented: “We know now we can walk this journey, thanks to the Children’s Trust”.

Another said: “Children’s Trust has allowed us to see the light” and he referred to the key workers as his “angels”.

They also listened to some truly inspirational case studies by therapists that work with the children and noted that their passion and positivity was infectious.

The Children’s Trust is an amazing organisation, great facilities, beautiful setting, and staff who exude openness and professionalism.

These events are held twice a year and we encourage you to book early as places go fast!

 

Quick Facts - Things You May Not Know About The Children's Trust!
 
  • The Children's Trust is the UK's leading charity for children with brain injury
  • Every year we help hundreds of children, young people and families from right across the UK
  • The latest NHS figures estimate that over 40,000 children suffer an acquired brain injury every year
  • We work with children who have had a brain injury for all kinds of reasons. Often it's the result of a road accident, but we also see children who have been affected by meningitis, stroke, a brain tumour or cardiac arrest. We also work with children who were born with their disabilities
  • Every brain injury is different. Most children eventually make a good recovery and won't need long-term support. But an estimated 5,000 will need help with ongoing difficulties. Often these issues aren't visible and for this reason acquired brain injury is sometimes called 'the hidden disability'. In the most severe cases children will be left with significant physical disabilities and learning difficulties
  • The Children's Trust is there for all these children. Our intensive rehabilitation service helps children with severe brain injury to make the best recovery they can. Our community-based services help children make a successful return to school after a brain injury. And our Brain Injury Hub is a vital source of information and advice to parents all over the country
  • We couldn't do all this without your support. We need to raise around £7 million every year to keep our services running and develop innovative news ways to reach more children and families
  • Our specialist centre in Tadworth, Surrey is best known as the home of our national brain injury rehabilitation service, but here we also provide education and medical care for children with multiple disabilities and complex health needs
  • Over 500 staff and volunteers offer care, support and advice to children and families every hour of every day, all year round
  • We became an independent charity in 1984. Before that we were the country branch of Great Ormond Street Hospital for Children. You can read more about our history here
 

Spotlight on the SNAP Hub 

Traveleyes


Traveleyes is the world's first and foremost commercial company specialising in opening access to independent world travel for blind and partially sighted people. 
 
If you have a favourite service, organisation, product or a company you would like to see in the hub or would like to enquire about sponsoring a page, please contact us.

  

 

SNAP's Visit To the Cystic Fibrosis Trust HQ

On Friday 31st July some of the staff at SNAP were lucky enough to be invited to visit the new The Cystic Fibrosis HQ in Aldgate. This was in recognition for us joining in a fundraising event organised by the work colleagues of David Kingston from Colleague, a recruitment software company. David tragically lost his daughter Emma to Cystic Fibrosis (CF).

Gemma Walder, the Community Development and Fundraising Manager for the Cystic Fibrosis Trust, welcomed us and showed us around the fabulous new headquarters. Gemma talked about the fantastic work the trust does offering support and information and of course, the research to try to find medical advances. The treatment and management of CF has come on in leaps and bounds, and more funds will enable that work to continue until hopefully one day there is a cure.

As a special needs agency of course we were aware of CF and had indeed helped families with children who have this inherited disease. I don’t believe though any of us really understood the reality of how this debilitating disease affects not only the individual, but their family and their friends too. 

We spoke at length to David who is passionate about supporting the Trust. We never met Emma, but David was able to give us such an insight into his daughter, we left feeling we knew her very well; how living with CF had affected her of course, but also what a zest for life she had and what an amazing young woman she clearly was. She touched the lives of so many and her memory will continue to be a driving force to help the fight against CF.

We had a fabulous time and it was great to see in person what a great service the Trust offers and of course to meet David and Louis who made the fundraising event such a success.

The photo below shows the presentation of a cheque for £6,896.80 to the Trust, from left to right: Gemma Walder from Cystic Fibrosis Trust, Louis Welcomme from Colleague software, Sally, Janet, Rachael and Jade from SNAP and David Kingston, Emma’s father.

In our August news, we discuss the fundraising event in more detail; we think this could be a great new way to fund raise for such worthy causes such as this one.

 

Organ Donor Line 0300 123 2323

Emma sadly lost her battle to CF while waiting for double lung transplant; her only hope to extending her life.

Right now there are more than 8,000 people in the UK who need an organ transplant that could save their life or improve their quality of life, including around 70 people with cystic fibrosis waiting for a heart, lung, or both.

If you want to help someone like Emma live after your death, sign up to the register now.

 

More About Cystic Fibrosis

The Cystic Fibrosis Trust have lots of information on their website and some great Youtube clips – do take a look.

 

Some of our favourite YouTube Clips

Tell Us About Your Favourite Clips!

Disability Awareness Day, and also Paralympic Day celebrated in July 

Animated film about Cerebral Palsy that Tegan helped to write and produce. 

Have something to share?

If you have a favourite video clip, app, website or book, why not send us the details so we can share with everyone through SNAP News. We would also love to hear about new technology and equipment, activities and resources that you particularly like. 

Send your nuggets to jackie@snapchildcare.co.uk or call Jackie on 020 7729 2200 
 



SNAP Childcare / SNAP16+ - the specialist recruitment agency placing high calibre professionals to support babies, children, teenagers, young adults and adults with additional needs since 2001.

 
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