On Friday 31st July some of the staff at SNAP were lucky enough to be invited to visit the new The Cystic Fibrosis HQ in Aldgate. This was in recognition for us joining in a fundraising event organised by the work colleagues of David Kingston from Colleague, a recruitment software company. David tragically lost his daughter Emma to Cystic Fibrosis (CF).
Gemma Walder, the Community Development and Fundraising Manager for the Cystic Fibrosis Trust, welcomed us and showed us around the fabulous new headquarters. Gemma talked about the fantastic work the trust does offering support and information and of course, the research to try to find medical advances. The treatment and management of CF has come on in leaps and bounds, and more funds will enable that work to continue until hopefully one day there is a cure.
As a special needs agency of course we were aware of CF and had indeed helped families with children who have this inherited disease. I don’t believe though any of us really understood the reality of how this debilitating disease affects not only the individual, but their family and their friends too.
We spoke at length to David who is passionate about supporting the Trust. We never met Emma, but David was able to give us such an insight into his daughter, we left feeling we knew her very well; how living with CF had affected her of course, but also what a zest for life she had and what an amazing young woman she clearly was. She touched the lives of so many and her memory will continue to be a driving force to help the fight against CF.
We had a fabulous time and it was great to see in person what a great service the Trust offers and of course to meet David and Louis who made the fundraising event such a success.
The photo below shows the presentation of a cheque for £6,896.80 to the Trust, from left to right: Gemma Walder from Cystic Fibrosis Trust, Louis Welcomme from Colleague software, Sally, Janet, Rachael and Jade from SNAP and David Kingston, Emma’s father.
In our August news, we discuss the fundraising event in more detail; we think this could be a great new way to fund raise for such worthy causes such as this one.
Organ Donor Line 0300 123 2323
Emma sadly lost her battle to CF while waiting for double lung transplant; her only hope to extending her life.
Right now there are more than 8,000 people in the UK who need an organ transplant that could save their life or improve their quality of life, including around 70 people with cystic fibrosis waiting for a heart, lung, or both.
If you want to help someone like Emma live after your death, sign up to the register now.
More About Cystic Fibrosis
The Cystic Fibrosis Trust have lots of information on their website and some great Youtube clips – do take a look.