September Snap News Sponsors:

This month's banner was won by HCB Solicitors through our auction in support of Chris Bunting's amazing Wing Walk for Cerebra
HCB Solicitors

A very big THANK YOU to HCB Solicitors for their generous winning bid for the above banner!thank you!
Want to see your company, product or organisation here next month? Our newsletter goes out to over 20,000 people - all with an interest in disability issues! All proceeds to charity!

Next month's chosen charity is The Sohana Research Fund. This is a charity close to Snap's heart and 21st October is the start of EB Awareness Week. 
Email to submit your bid for next month! 
(*Companies or products must be appropriate / disability-related)


Contact - the new name for Contact a Family 

Contact a Family re-brands to reach more families with disabled children sooner

National disability charity Contact a Family has rebranded to Contact, overhauling its identity both on and offline to reach more families with disabled children sooner and to highlight the breadth of work it does.

Contact, the charity for families with disabled children, worked with parents and carers to help develop a clearer, simpler and more accessible look and feel, to make it easier for families who might benefit from the charity’s support to quickly and easily understand what it can offer and that the charity is here for all of them - whoever they are and whatever their child’s condition - just like it always has been. 

Amanda Batten, CEO of Contact explains what prompted the re-brand: “We found that our old name was confusing and acted as a barrier to some families with disabled children, stopping them from finding out about how we can help. So, we decided to shorten our name to Contact - it’s pretty much what we do in every area of our work whether that’s putting families in contact with each other or in contact with us for vital advice, support and information that they find difficult to find anywhere else. “

Contact’s new look and feel is a critical factor in helping the charity achieve its ambition to reach more families with disabled children as soon as they need support, help and advice. 

As part of the rebrand Contact reviewed all the information it provides to make it more accessible for families to navigate. As well as launching a new version of the charity’s website and online information, Contact has also revamped its guides and factsheets for families as well as publishing a brand new free resource The Helpful Guide for Families with Disabled Children, a little book with everything you need to know  - when you don’t know where to turn. 

Amanda Batten continues: “Our new brand aims to bring out the true essence of what lies at the heart of everything we do: families. We’re determined to reach more families as soon as they need us. And our new brand will help us do this through the messages we use, how we talk about ourselves and what we look like.  We care passionately about families with disabled children and we’re here to help – that certainly hasn’t changed. And the way we work won’t change either – in partnership with families and with great warmth. We know our new look won’t suddenly make us a household name, but by making our offer to families easier to understand, it will help us reach more families and help us to reach them as soon as they need us.”

The majority of costs for re-branding were met by a generous supporter of Contact’s work and with pro bono support from Brunswick PR and design company, ASHA who helped Contact develop the new brand.

>> More Info

Be Seen, Not HurtGlow Day

Glow Day, Road Safety Campaign, Child Brain Injury Trust

The school holidays are over, the leaves are starting to turn and autumn will soon be here. At the Child Brain Injury Trust our thoughts turn to the changing seasons, the darker conditions and the impact this may have on the number of children we see with an acquired brain injury.

Every year, hundreds of children in the UK suffer a life changing brain injury on our roads. This could be caused by being involved in a road traffic collision, bike or scooter accidents and much more. That’s why whether they’re holding a parent’s hand, scooting on ahead or walking or cycling on their own, it’s vitally important that children (and adults too!), stay safe,  especially as the nights draw in and the clocks go back.

>> More Info

HCB Solicitors

Our expert special educational needs solicitors help parents and families, and the professionals supporting them, to secure the special educational provision the young person needs. Most disabled young people often face the greatest difficulties in accessing education or staying in education.

We support case managers, and other solicitors, to assist with securing additional support for special educational needs. The temptation can be to use funding secured through a negligence, or personal injury claim, rather than to resolve a dispute. This is not a long-term solution, especially when the claim has not secured 100% liability.

Local authorities can also, wrongly, expect the young person to use their compensation to pay for their education. If this is happening, you should be seeking advice as soon as possible.

If your client is facing difficulties, or you are not sure what they might be entitled to, our specialist education law solicitors are happy to help. Please feel free to call us on 02920 291704 or send us an email at

>> Click Here To Find Out More

Milestones MatterGiulia Pintus

Individualised Interventions: case Study 2

Giulia Pintus founded Milestones Matter to help families with children presenting with developmental delay in the early years. She creates individualised interventions to support not just the child, but the whole family at a time when effective help is needed to cope with and overcome a difficult situation. Giulia presents a case study below. The first case study can be read in the August Newsletter

Case Study: ‘R’ Family. Father, 50, Mother, 39, ‘Emma’, 14 months

Areas of Concerns: Hip dysplasia, Hypotonia, Developmental Delays

Presentation:  Mrs and Mr R got in touch with me as their daughter had previously had several operations to her legs and hips and was ‘red-flagged’ to be presenting developmental delay and hypotonia (low muscle tone). The doctors were unsure on whether Emma would be able to walk.

The family had consultations with different professionals and decided to support Emma focusing on her physical rehabilitation and also her play and communicative skills. Emma was the family’s only child and the parents were naturally apprehensive about the challenges their child was going through, but remained positive and determined to get effective support for Emma. 

For more information on Milestone Services, email:

A guide to Neurological Occupational Therapy

Occupational Therapists work with both adults and children with neurological conditions to maximise their independence in day to day activities. This guide has been written by an experienced neurological OT to explain some of the ways that occupational therapy can help clients achieve their goals in neuro rehabilitation. Containing a helpful glossary of terms often used by the medical professions in the neuro world, the article is a great read for anyone with a professional or personal interest in neurological conditions. 

>> Read More

Asda Jenny's Little Helpers

Asda colleagues creates child-friendly shopping list game

An Asda colleague, who came up with the idea of the Happy Little Helpers initiative, has seen the scheme rolled out to more than 300 stores nationwide following a huge success in the store she works in up in Middlesbrough.

Jenny Barnett, who has a four-year-old autistic son Charlie, knows how difficult it can be trying to complete the weekly shop as a family. So in March this year she designed and created a child friendly shopping list using symbols of groceries such as fruit, vegetables and biscuits.

Charlie and other children visiting the store can use the Velcro-backed symbols to help their parents shop, making it easier for children to ignore distractions and ensure a calmer, stress free shopping trip.

>>

Without Limits: Vietnam

Six people with different physical disabilities embark on an ambitious and emotional adventure of a lifetime through the diverse landscapes of Vietnam. Although shadowed by film and safety crews, the group are in charge of their journey, navigating the route and the difficult access in a country ill-equipped for disability.

Sensory Spectacle Column:

Recognising the impact SPD has in a classroom

Classrooms can be a very noisy, busy environment. All children thrive off different sensory experiences and therefore also learn in different ways. It is important that educational settings like nurseries and classrooms are flexible in order to meet children's needs with sensory difficulties.
Some of the ways a child may be impacted in a classroom environment could be relating to a constant stream of sounds, whether its students, teachers, chairs, technology, the weather, music etc all of these things for some people can be heard as the same importance meaning they are likely to become distracted and overwhelmed by auditory input quite easily. We might notice children covering their ears or putting their fingers in their ears or behind their ears as well as making noises, screaming, humming or repeating phrases at the same time.
Children who are constantly on the move or appear to be fidgeting could be seeking vestibular (movement) and proprioceptive input. It might be a child moves around a lot, finds it difficult to sit in one place, walks, jumps, spins, bangs the table while working or doing an activity.

>> Read the rest of the article here...

Nannytax | Staff Tax Column:
Employment Contracts

As soon as someone accepts a job offer they have a verbal contract with their employer. However a written contract or ‘statement of employment particulars’ must be provided within two months of the employee’s start date. 

Employees and employers must adhere to the contract until it ends (e.g. by either party giving notice) or until the terms are changed (which can be done by mutual agreement).

What are the implications if there is no written contract in place?
Not having a contract can cause problems when a disagreement or misunderstanding arises between employer and employee regarding the terms of employment.When there is no written contract in place the terms of employment will be determined by evidence such as payslips, letters or emails. An oral agreement can also be used but for obvious reasons this is hard to establish.

Regardless of whether there is a written contract or not, employees are still protected by statutory rights. Examples of statutory rights include paying at least the minimum wage, paid annual leave, statutory sick pay, protection from discrimination, a safe work environment, etc.

Snap Out & About: 
Sally & Camilla go to Parallel London Parallel London

Parallel London is a fully-accessible and inclusive fun run and family day. Only in it's second year, the event already feels so well-established it's hard to believe it hasn't been an annual event for years. 

I went last year and was so impressed, at last a genuinely fully-inclusive sporting event. Everyone had a great day and this year was no different - it was just bigger and better! 

I went with Camilla, my step-daughter (and our original inspiration to start Snap) and her dad. Camilla has cerebral palsy, learning disabilities and is a wheelchair user. It was a welcome relief to attend an event that was geared up to wheelchair access, but more than that the positive and inclusive atmosphere from everyone involved (even staff at the park Cafe) was positively life-affirming! 

I think Camilla's favourite part of the day was when we stopped to say hello to the marvelous (and super-glamorous!) Samantha Renke, who explains why she's a fan of Parallel London in the video below.

As well as the races, there were numerous activities and performances and some excellent speakers. Mark Bullock was one such speaker and has written a fantastic piece about the event which you can read here. Founder of Parallel London, Andrew Douglass also gave a fabulous talk that included the following borrowed phrase which sums up Parallel London very well:

"Diversity is being invited to the party; inclusion is being asked to dance," 

Actress and Disability Campaigner Samantha Renke on Parallel London

Bush & Co Presentation

Sally Britton from Snap was delighted to be invited to speak at the Bush and Co regional meetings in Manchester and Northampton. It was lovely to catch up with the team at Bush and Co and hear about the great work they are doing. 

The presentation to Case Managers and Expert Witnesses, looked at costing care and in particular Night Care which has been prominent in the news regarding Sleeping Nights and the National Minimum Wage. 

If you would like to know more about Snap presenting to your case managers or expert witnesses, please email: 

Wills for those who may lack capacityHyphen Law

Hyphen Law is a specialist law firm advising clients and their representatives on all issues relating to the management of their property and affairs through the Court of Protection or a Personal Injury Trust. 

Kelly Knight Kelly Knight, a solicitor at Hyphen Law, writes about the Will writing process for her clients with a mental impairment.

Acquiring a brain injury or some other form of mental impairment doesn’t automatically mean that you lose the ability to make a Will.  However, if you make a Will and are then found not to have had the level of understanding needed to do so, the Will may not be valid and it could be challenged after your death. It is therefore important to ensure that such a Will is prepared carefully and with the support of an experienced medical practitioner and lawyer whose records may provide important evidence in the event of the Will being challenged. 

What is a Statutory Will?
Anyone who makes a Will must have what is known as testamentary capacity.  In broad terms this means the ability to understand what a Will is, when it will be used, the value of their assets and who might have some entitlement to their estate and then be able to weigh up all of these issues and reach a decision about who should benefit.  If someone lacks testamentary capacity the Court of Protection has the ability to approve a Will on their behalf.  This is called a Statutory Will. 

The intestacy provisions set out how someone’s estate will be distributed if they die without a Will but they may not be appropriate for everyone.  The intestacy provisions do not for example recognise a long term partner or stepchildren.  So in circumstances where the intestacy rules are unsuitable a Statutory Will may be appropriate for someone who lacks capacity to make a Will and has no Will or a Will that is out of date. 

How is a Statutory Will made?
An application is made to the Court of Protection. The application provides the Court with full details of the incapacitated person’s financial and personal circumstances.  It will also include a draft of the proposed Will, an explanation as to why the intestacy provisions or a current Will are inadequate, and will be supported by medical evidence confirming that the person for whom the Will is needed lacks testamentary capacity. 

How does the Court make a decision?
The Court must act in the incapacitated person’s best interests when deciding on the content of the Will and it will take into consideration a number of things including their past and present wishes and views and the thoughts of those closest to them. 

To find out more visit or call Kelly or another member of the legal team for a no obligation discussion on ( 01983) 213529 or email

YouTube Clip
Our favourite clip from September 

It has to be more about Parallel London!
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Send your nuggets to or call Jackie on 020 7729 2200 

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